Welcome to my Blog

If someone had told me 30 years ago that I’d be sitting in a room with our Senator, advocating for education and civil rights, I would...

For weeks, I haven’t been able to sleep. Since January, the fear of what’s happening to public education—and especially special...

I have never been someone who speaks about anything remotely political. It makes me uncomfortable, and I don’t like placing blame. But I...

Life can change in an instant, and for me, that moment came during what I thought was a routine eye exam. My son’s diagnosis with Usher...

A few weeks ago I was featured in Parents Magazine, sharing my tips for a more inclusive Halloween . I shared a lot of tips from how to...

Every third Saturday of September marks Usher Syndrome Awareness Day, and this year, it falls on September 21, 2024. This day always...

In this blog I describe some of the benefits of family involvement in special education - one of my favorite topics and a focus of my resear

Last night I was finally ready - ready to get back on my horse - literally and figuratively. I moved out of my ranch back in December to...

As a research analyst at the Center on Reinventing Public Education, I've researched school/district response to the pandemic. I've...

September 19 is Usher Syndrome Awareness Day. It’s always a day that causes me to reflect on all that I am thankful for. Like many of...

I was asked to share my experiences and perspectives about remote learning for children who are deafblind, like my son Dalton....

Today I started the day in tears in my car, a reminder of the long emotional few weeks our family has been through. A few months ago, our...

As part of my efforts to help more families dealing with Usher syndrome, I was happy to be interviewed by Professor Amy Parker of...

I’m excited to share my podcast about raising two sons with Usher syndrome. In my first episode, I tell you a little about my family, and...

I had the privilege of attending and presenting at the first-ever Network of the Americas Conference sponsored by Deafblind International...

A link to my talking about the research study I did on self-determination.